Thu. Sep 28th, 2023


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Mother devastated after son is diagnosed with rare cancer following transplant

2 min read

A mother has been left devastated after her six-year-old son was diagnosed with cancer following a liver transplant surgery. Elena Reed’s son Nicholas was diagnosed with biliary astresia – a childhood liver disease that blocks the bile ducts – as a newborn. He spent months in an intensive care unit before undergoing liver transplant surgery to save his life when he was just five months old. But since the surgery, Nicholas has faced a number of complications, resulting in over 100 hospitalisations and a number of surgeries. Devastatingly, Nicholas was diagnosed with post-transplant cancer in June that doctors said was in its “last stage”.

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Ms Reed, a single mother-of-three boys from Sydney, Australia, said Nicholas had complained of a “sore tummy” the week before the family recieved the shocking news.

“I was blaming myself thinking that I had missed it, but I hadn’t missed any scheduled appointments,” she told Yahoo! News.

The 45-year-old said the last week has been particularly difficult after her son’s hair began to fall out as a result of chemotherapy.

“He’s such a deep soul,” Ms Reed said. “He was so looking forward to school holidays.”

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Ms Reed said the devastating news had been “totally out of the blue”.

“Lately he has been doing really well. We hadn’t been to the hospital for almost a year,” she said. 

“It’s everywhere now – it’s spread in his stomach, in his intestines, all the way up to his shoulders and lungs as well – it’s the worst type of lymphoma.”

Nicholas will now need at least two years of treatment – including radiation.

“There’s hope but there’s also complications,” Ms Reed said. “I cry everyday”.

The single mum said she is “just surviving” after the news. A GoFundMe page has been set up by family friends and has so far raised more than $27,000 of its $30,000 goal. 

“This latest diagnosis has rocked Elena to her core and she desperately needs our help even though she won’t ask,” the organisers wrote on the page.  

Ms Reed said: “Without this help we would never be able to see the other side.”

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